Bibliography for SOCS0059: Research Engagement, Participation and Impact BETA

@article{Arnstein_1969, title={A Ladder Of Citizen Participation}, volume={35}, DOI={10.1080/01944366908977225}, number={4}, journal={Journal of the American Institute of Planners}, author={Arnstein, Sherry R.}, year={1969}, month=july, pages={216–224} }

@article{Beresford_2007, title={User involvement, research and health inequalities: developing new directions}, volume={15}, DOI={10.1111/j.1365-2524.2007.00688.x}, number={4}, journal={Health & Social Care in the Community}, author={Beresford, Peter}, year={2007}, month=feb, pages={306–312} }

@article{BLACKSHER_DIEBEL_FOREST_GOOLD_ABELSON_2012, title={What Is Public Deliberation?}, volume={42}, DOI={10.1002/hast.26}, number={2}, journal={Hastings Center Report}, author={BLACKSHER, ERIKA and DIEBEL, ALICE and FOREST, PIERRE-GERLIER and GOOLD, SUSAN DORR and ABELSON, JULIA}, year={2012}, month=mar, pages={14–16} }

@misc{Brunton, G; Caird, J; Stokes, G; Stansfield, C; Kneale, D; Richardson, M ; and others_2015, title={Review 1: Community engagement for health via coalitions, collaborations and partnerships: A systematic review}, url={https://www.nice.org.uk/guidance/ng44/evidence/evidence-review-1-community-engagement-2015-brunton-pdf-2368403677}, publisher={EPPI Centre, Social Science Research Unit, Institute of Education, University of London}, author={Brunton, G; Caird, J; Stokes, G; Stansfield, C; Kneale, D; Richardson, M ; and others}, year={2015} }

@article{Burawoy_2004, title={Public Sociologies: Contradictions, Dilemmas, and Possibilities}, volume={82}, DOI={10.1353/sof.2004.0064}, number={4}, journal={Social Forces}, author={Burawoy, M.}, year={2004}, month=june, pages={1603–1618} }

@article{Byrne_Canavan_Millar_2009, title={Participatory research and the voice‐centred relational method of data analysis: is it worth it?}, volume={12}, DOI={10.1080/13645570701606044}, number={1}, journal={International Journal of Social Research Methodology}, author={Byrne, Anne and Canavan, John and Millar, Michelle}, year={2009}, month=feb, pages={67–77} }

@article{Chalmers_Bracken_Djulbegovic_Garattini_Grant_Gülmezoglu_Howells_Ioannidis_Oliver_2014, title={How to increase value and reduce waste when research priorities are set}, volume={383}, DOI={10.1016/S0140-6736(13)62229-1}, number={9912}, journal={The Lancet}, author={Chalmers, Iain and Bracken, Michael B and Djulbegovic, Ben and Garattini, Silvio and Grant, Jonathan and Gülmezoglu, A Metin and Howells, David W and Ioannidis, John P A and Oliver, Sandy}, year={2014}, month=jan, pages={156–165} }

@misc{ address={Proceedings of PATH (Participatory Approaches in Science Technology) Conference, 4-7 June 2006, Edinburgh}, title={Dare we jump off Arnstein’s ladder? Social learning as a new policy paradigm}, url={http://oro.open.ac.uk/8589/}, author={Collins K, Ison R} }

@article{Cook_2008, title={Integrating research and action: a systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA}, volume={62}, DOI={10.1136/jech.2007.067645}, number={8}, journal={Journal of Epidemiology & Community Health}, author={Cook, W K}, year={2008}, month=aug, pages={668–676} }

@inbook{Cornwall_1996, address={London}, title={Towards participatory practice: Participatory rural appraisal (PAR) and the participatory process}, booktitle={Participatory research in health: issues and experiences}, publisher={Zed}, author={Cornwall, A.}, year={1996}, pages={94–107} }

@article{Cullen_Coryn_Rugh_2011, title={The Politics and Consequences of Including Stakeholders in International Development Evaluation}, volume={32}, DOI={10.1177/1098214010396076}, number={3}, journal={American Journal of Evaluation}, author={Cullen, Anne E. and Coryn, Chris L. S. and Rugh, Jim}, year={2011}, month=sept, pages={345–361} }

@inbook{2006, address={Bristol}, title={Deliberation: towards an understanding of practice}, url={https://contentstore.cla.co.uk/secure/link?id=9125595f-a9f7-e711-80cd-005056af4099}, booktitle={Citizens at the centre: deliberative participation in healthcare decisions}, publisher={Policy}, author={Davies C, Wetherell MS and Barnett E}, year={2006} }

@article{Frickel_Gibbon_Howard_Kempner_Ottinger_Hess_2010, title={Undone Science: Charting Social Movement and Civil Society Challenges to Research Agenda Setting}, volume={35}, DOI={10.1177/0162243909345836}, number={4}, journal={Science, Technology, & Human Values}, author={Frickel, Scott and Gibbon, Sahra and Howard, Jeff and Kempner, Joanna and Ottinger, Gwen and Hess, David J.}, year={2010}, month=july, pages={444–473} }

@article{Grand, Ann ; Holliman, Richard ; Collins, Trevor ; Adams, Anne_2016, title={‘We muddle our way through’: shared and distributed expertise in digital engagement with research}, volume={Vol.15(4)}, url={https://jcom.sissa.it/archive/15/04/JCOM_1504_2016_A05}, journal={Journal of Science Communication}, author={Grand, Ann ; Holliman, Richard ; Collins, Trevor ; Adams, Anne}, year={2016} }

@book{Hart_UNICEF. International Child Development Centre_1992, address={Florence}, title={Children’s participation: from tokenism to citizenship}, volume={no.4}, publisher={UNICEF International Child Development Centre}, author={Hart, Roger A. and UNICEF. International Child Development Centre}, year={1992} }

@book{Heggenhougen_Quah_2008, address={Amsterdam}, title={International encyclopedia of public health}, url={http://www.sciencedirect.com/science/referenceworks/9780123739605}, publisher={Elsevier/Academic Press}, author={Heggenhougen, Kris and Quah, Stella R.}, year={2008} }

@misc{2015a, title={An Open Research University}, url={http://oro.open.ac.uk/44255/}, publisher={The Open University}, author={Holliman, Richard et al}, year={2015} }

@article{Hubbard_Kidd_Donaghy_McDonald_Kearney_2007, title={A review of literature about involving people affected by cancer in research, policy and planning and practice}, volume={65}, DOI={10.1016/j.pec.2006.02.009}, number={1}, journal={Patient Education and Counseling}, author={Hubbard, Gill and Kidd, Lisa and Donaghy, Edward and McDonald, Charlotte and Kearney, Nora}, year={2007}, month=jan, pages={21–33} }

@inbook{2009, address={Chichester, UK}, title={Chapter 1: History, context and language.}, url={http://dx.doi.org/10.1002/9780470743157}, booktitle={Handbook of service user involvement in mental health research}, publisher={Wiley-Blackwell}, author={Jan Wallcraft and Mary Nettle}, year={2009} }

@article{Jones_Villar_2008, title={Situating children in international development policy: challenges involved in successful evidence-informed policy influencing}, volume={4}, DOI={10.1332/174426408783477891}, number={1}, journal={Evidence & Policy: A Journal of Research, Debate and Practice}, author={Jones, Nicola and Villar, Eliana}, year={2008}, month=jan, pages={31–51} }

@article{MARSHMAN_GIBSON_OWENS_RODD_MAZEY_BAKER_BENSON_ROBINSON_2007, title={Seen but not heard: a systematic review of the place of the child in 21st-century dental research}, volume={17}, DOI={10.1111/j.1365-263X.2007.00845.x}, number={5}, journal={International Journal of Paediatric Dentistry}, author={MARSHMAN, ZOE and GIBSON, BARRY J. and OWENS, JANINE and RODD, HELEN D. and MAZEY, HUW and BAKER, SARAH R. and BENSON, PHILIP E. and ROBINSON, PETER G.}, year={2007}, month=sept, pages={320–327} }

@article{Martin_2008, title={‘Ordinary people only’: knowledge, representativeness, and the publics of public participation in healthcare}, volume={30}, DOI={10.1111/j.1467-9566.2007.01027.x}, number={1}, journal={Sociology of Health & Illness}, author={Martin, Graham P.}, year={2008}, month=jan, pages={35–54} }

@inbook{Moore_2015, address={Madison, WI}, title={Powered by the People: Scientific Authority in Participatory Science}, url={https://contentstore.cla.co.uk/secure/link?id=4d5b1072-890a-e811-80cd-005056af4099}, booktitle={The New Political Sociology of Science: Institutions, Networks, and Power}, publisher={University of Wisconsin Press}, author={Moore, Kelly}, year={2015}, pages={299–323} }

@article{Moules_O’Brien_2012, title={Participation in perspective: reflections from research projects}, volume={19}, DOI={10.7748/nr2012.01.19.2.17.c8904}, number={2}, journal={Nurse Researcher}, author={Moules, Tina and O’Brien, Niamh}, year={2012}, month=jan, pages={17–22} }

@article{Murphy, M K ; Black, N A ; Lamping, D L ; Mckee, C M ; Sanderson, C F ; Askham, J ; Marteau, T_1998, title={Consensus development methods, and their use in clinical guideline development}, url={https://www.journalslibrary.nihr.ac.uk/hta/hta2030/#/full-report}, journal={Health Technology Assessment}, author={Murphy, M K ; Black, N A ; Lamping, D L ; Mckee, C M ; Sanderson, C F ; Askham, J ; Marteau, T}, year={1998} }

@book{Nind_2014, address={London}, title={What is inclusive research?}, url={https://www.bloomsburycollections.com/book/what-is-inclusive-research/}, publisher={Bloomsbury}, author={Nind, Melanie}, year={2014} }

@article{Nowotny_Scott_Gibbons_2003, title={Introduction: `Mode 2’ Revisited: The New Production of Knowledge}, volume={41}, DOI={10.1023/A:1025505528250}, number={3}, journal={Minerva}, author={Nowotny, Helga and Scott, Peter and Gibbons, Michael}, year={2003}, pages={179–194} }

@inbook{Oliver_2008, title={Public and Consumer Participation in Policy and Research}, url={http://www.sciencedirect.com/science/referenceworks/9780123739605}, DOI={10.1016/B978-012373960-5.00586-4}, booktitle={International Encyclopedia of Public Health}, publisher={Elsevier}, author={Oliver, S.}, year={2008}, pages={408–415} }

@article{Oliver_Clarke-Jones_Rees_Milne_Buchanan_Gabbay_Gyte_Oakley_Stein_2004, title={Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach}, volume={8}, DOI={10.3310/hta8150}, number={15}, journal={Health Technology Assessment}, author={Oliver, S and Clarke-Jones, L and Rees, R and Milne, R and Buchanan, P and Gabbay, J and Gyte, G and Oakley, A and Stein, K}, year={2004}, month=apr }

@article{Oliver_Liabo_Stewart_Rees_2015, title={Public involvement in research: making sense of the diversity}, volume={20}, DOI={10.1177/1355819614551848}, number={1}, journal={Journal of Health Services Research & Policy}, author={Oliver, Sandy and Liabo, Kristin and Stewart, Ruth and Rees, Rebecca}, year={2015}, month=jan, pages={45–51} }

@misc{2003, title={Types and quality of knowledge in social care}, url={https://www.scie-socialcareonline.org.uk/types-and-quality-of-knowledge-in-social-care/r/a11G00000017vBqIAI}, publisher={Social Care Institute for Excellence}, author={Pawson, R., Boaz, A., Grayson, L., Long, A. & Barnes, C.}, year={2003} }

@article{Percy-Smith_2006, title={‘You think you know? ... You have no idea’: youth participation in health policy development}, volume={22}, DOI={10.1093/her/cym032}, number={6}, journal={Health Education Research}, author={Percy-Smith, B.}, year={2006}, month=aug, pages={879–894} }

@article{Richardson_2013, title={Putting the Research Boot on the Policymakers’ Foot: Can Participatory Approaches Change the Relationship between Policymakers and Evaluation?}, volume={47}, DOI={10.1111/spol.12031}, number={4}, journal={Social Policy & Administration}, author={Richardson, Liz}, year={2013}, month=aug, pages={483–500} }

@inbook{2011, address={Abingdon}, title={Ways of thinking about user engagement}, url={https://contentstore.cla.co.uk/secure/link?id=22b2337c-3700-e811-80cd-005056af4099}, booktitle={Improving research through user engagement}, publisher={Routledge}, author={Rickinson M, Sebba J, Edwards A}, year={2011} }

@book{Rifkin_Pridmore_Teaching Aids at Low Cost_2001, address={London}, title={Partners in planning: information, participation and empowerment}, publisher={Macmillan}, author={Rifkin, Susan B. and Pridmore, Pat and Teaching Aids at Low Cost}, year={2001} }

@article{Rowe_Frewer_2005, title={A Typology of Public Engagement Mechanisms}, volume={30}, DOI={10.1177/0162243904271724}, number={2}, journal={Science, Technology, & Human Values}, author={Rowe, Gene and Frewer, Lynn J.}, year={2005}, month=apr, pages={251–290} }

@article{Staley_2015, title={‘Is it worth doing?’ Measuring the impact of patient and public involvement in research}, volume={1}, DOI={10.1186/s40900-015-0008-5}, number={1}, journal={Research Involvement and Engagement}, author={Staley, Kristina}, year={2015}, month=dec }

@article{Staley_Doherty_2016, title={It’s not evidence, it’s insight: bringing patients’ perspectives into health technology appraisal at NICE}, volume={2}, DOI={10.1186/s40900-016-0018-y}, number={1}, journal={Research Involvement and Engagement}, author={Staley, Kristina and Doherty, Caroline}, year={2016}, month=dec }

@article{Stewart_Liabo_2012, title={Involvement in research without compromising research quality}, volume={17}, DOI={10.1258/jhsrp.2012.011086}, number={4}, journal={Journal of Health Services Research & Policy}, author={Stewart, Ruth and Liabo, Kristin}, year={2012}, month=oct, pages={248–251} }

@misc{2015b, title={Review 3: Community engagement for health via coalitions, collaborations and partnerships (on-line social media and social networks) – a systematic review and metaanalysis}, url={https://eppi.ioe.ac.uk/cms/Default.aspx?tabid=3478}, publisher={EPPI-Centre, Social Science Research Unit, UCL Institute of Education}, author={Stokes G, Richardson M, Brunton G, Khatwa M, Thomas J}, year={2015} }

@article{Telford_Boote_Cooper_2004, title={What does it mean to involve consumers successfully in NHS research? A consensus study}, volume={7}, DOI={10.1111/j.1369-7625.2004.00278.x}, number={3}, journal={Health Expectations}, author={Telford, Rosemary and Boote, Jonathan D. and Cooper, Cindy L.}, year={2004}, month=aug, pages={209–220} }

@article{Warren_Garthwaite_2015, title={Whose side are we on and for whom do we write? Notes on issues and challenges facing those researching and evaluating public policy}, volume={11}, DOI={10.1332/174426415X14314311257040}, number={2}, journal={Evidence & Policy: A Journal of Research, Debate and Practice}, author={Warren, Jon and Garthwaite, Kayleigh}, year={2015}, month=may, pages={225–237} }

@article{Watermeyer_2016, title={Public intellectuals vs. new public management: the defeat of public engagement in higher education}, volume={41}, DOI={10.1080/03075079.2015.1034261}, number={12}, journal={Studies in Higher Education}, author={Watermeyer, Richard}, year={2016}, month=dec, pages={2271–2285} }