[1]
K. Heggenhougen and S. R. Quah, International encyclopedia of public health. Amsterdam: Elsevier/Academic Press, 2008. Available: http://www.sciencedirect.com/science/referenceworks/9780123739605
[2]
S. Oliver, ‘Public and Consumer Participation in Policy and Research’, in International Encyclopedia of Public Health, Elsevier, 2008, pp. 408–415. doi: 10.1016/B978-012373960-5.00586-4. Available: http://www.sciencedirect.com/science/referenceworks/9780123739605
[3]
M. Burawoy, ‘Public Sociologies: Contradictions, Dilemmas, and Possibilities’, Social Forces, vol. 82, no. 4, pp. 1603–1618, June 2004, doi: 10.1353/sof.2004.0064
[4]
S. B. Rifkin, P. Pridmore, and Teaching Aids at Low Cost, Partners in planning: information, participation and empowerment. London: Macmillan, 2001.
[5]
J. Warren and K. Garthwaite, ‘Whose side are we on and for whom do we write? Notes on issues and challenges facing those researching and evaluating public policy’, Evidence & Policy: A Journal of Research, Debate and Practice, vol. 11, no. 2, pp. 225–237, May 2015, doi: 10.1332/174426415X14314311257040
[6]
Jan Wallcraft and Mary Nettle, ‘Chapter 1: History, context and language.’, in Handbook of service user involvement in mental health research, Chichester, UK: Wiley-Blackwell, 2009. Available: http://dx.doi.org/10.1002/9780470743157
[7]
K. Moore, ‘Powered by the People: Scientific Authority in Participatory Science’, in The New Political Sociology of Science: Institutions, Networks, and Power, Madison, WI: University of Wisconsin Press, 2015, pp. 299–323. Available: https://contentstore.cla.co.uk/secure/link?id=4d5b1072-890a-e811-80cd-005056af4099
[8]
H. Nowotny, P. Scott, and M. Gibbons, ‘Introduction: `Mode 2’ Revisited: The New Production of Knowledge’, Minerva, vol. 41, no. 3, pp. 179–194, 2003, doi: 10.1023/A:1025505528250
[9]
P. Beresford, ‘User involvement, research and health inequalities: developing new directions’, Health & Social Care in the Community, vol. 15, no. 4, pp. 306–312, Feb. 2007, doi: 10.1111/j.1365-2524.2007.00688.x
[10]
S. R. Arnstein, ‘A Ladder Of Citizen Participation’, Journal of the American Institute of Planners, vol. 35, no. 4, pp. 216–224, July 1969, doi: 10.1080/01944366908977225
[11]
Collins K, Ison R, ‘Dare we jump off Arnstein’s ladder? Social learning as a new policy paradigm’. Proceedings of PATH (Participatory Approaches in Science Technology) Conference, 4-7 June 2006, Edinburgh. Available: http://oro.open.ac.uk/8589/
[12]
Pawson, R., Boaz, A., Grayson, L., Long, A. & Barnes, C., ‘Types and quality of knowledge in social care’. Social Care Institute for Excellence, 2003. Available: https://www.scie-socialcareonline.org.uk/types-and-quality-of-knowledge-in-social-care/r/a11G00000017vBqIAI
[13]
A. Cornwall, ‘Towards participatory practice: Participatory rural appraisal (PAR) and the participatory process’, in Participatory research in health: issues and experiences, London: Zed, 1996, pp. 94–107.
[14]
R. A. Hart and UNICEF. International Child Development Centre, Children’s participation: from tokenism to citizenship, vol. no.4. Florence: UNICEF International Child Development Centre, 1992.
[15]
M. Nind, What is inclusive research? London: Bloomsbury, 2014. Available: https://www.bloomsburycollections.com/book/what-is-inclusive-research/
[16]
S. Frickel, S. Gibbon, J. Howard, J. Kempner, G. Ottinger, and D. J. Hess, ‘Undone Science: Charting Social Movement and Civil Society Challenges to Research Agenda Setting’, Science, Technology, & Human Values, vol. 35, no. 4, pp. 444–473, July 2010, doi: 10.1177/0162243909345836
[17]
G. P. Martin, ‘“Ordinary people only”: knowledge, representativeness, and the publics of public participation in healthcare’, Sociology of Health & Illness, vol. 30, no. 1, pp. 35–54, Jan. 2008, doi: 10.1111/j.1467-9566.2007.01027.x
[18]
Rickinson M, Sebba J, Edwards A, ‘Ways of thinking about user engagement’, in Improving research through user engagement, Abingdon: Routledge, 2011. Available: https://contentstore.cla.co.uk/secure/link?id=22b2337c-3700-e811-80cd-005056af4099
[19]
R. Stewart and K. Liabo, ‘Involvement in research without compromising research quality’, Journal of Health Services Research & Policy, vol. 17, no. 4, pp. 248–251, Oct. 2012, doi: 10.1258/jhsrp.2012.011086
[20]
G. Rowe and L. J. Frewer, ‘A Typology of Public Engagement Mechanisms’, Science, Technology, & Human Values, vol. 30, no. 2, pp. 251–290, Apr. 2005, doi: 10.1177/0162243904271724
[21]
S. Oliver et al., ‘Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach’, Health Technology Assessment, vol. 8, no. 15, Apr. 2004, doi: 10.3310/hta8150
[22]
S. Oliver, K. Liabo, R. Stewart, and R. Rees, ‘Public involvement in research: making sense of the diversity’, Journal of Health Services Research & Policy, vol. 20, no. 1, pp. 45–51, Jan. 2015, doi: 10.1177/1355819614551848
[23]
A. Byrne, J. Canavan, and M. Millar, ‘Participatory research and the voice‐centred relational method of data analysis: is it worth it?’, International Journal of Social Research Methodology, vol. 12, no. 1, pp. 67–77, Feb. 2009, doi: 10.1080/13645570701606044
[24]
W. K. Cook, ‘Integrating research and action: a systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA’, Journal of Epidemiology & Community Health, vol. 62, no. 8, pp. 668–676, Aug. 2008, doi: 10.1136/jech.2007.067645
[25]
A. E. Cullen, C. L. S. Coryn, and J. Rugh, ‘The Politics and Consequences of Including Stakeholders in International Development Evaluation’, American Journal of Evaluation, vol. 32, no. 3, pp. 345–361, Sept. 2011, doi: 10.1177/1098214010396076
[26]
N. Jones and E. Villar, ‘Situating children in international development policy: challenges involved in successful evidence-informed policy influencing’, Evidence & Policy: A Journal of Research, Debate and Practice, vol. 4, no. 1, pp. 31–51, Jan. 2008, doi: 10.1332/174426408783477891
[27]
Z. MARSHMAN et al., ‘Seen but not heard: a systematic review of the place of the child in 21st-century dental research’, International Journal of Paediatric Dentistry, vol. 17, no. 5, pp. 320–327, Sept. 2007, doi: 10.1111/j.1365-263X.2007.00845.x
[28]
I. Chalmers et al., ‘How to increase value and reduce waste when research priorities are set’, The Lancet, vol. 383, no. 9912, pp. 156–165, Jan. 2014, doi: 10.1016/S0140-6736(13)62229-1
[29]
Davies C, Wetherell MS and Barnett E, ‘Deliberation: towards an understanding of practice’, in Citizens at the centre: deliberative participation in healthcare decisions, Bristol: Policy, 2006. Available: https://contentstore.cla.co.uk/secure/link?id=9125595f-a9f7-e711-80cd-005056af4099
[30]
E. BLACKSHER, A. DIEBEL, P.-G. FOREST, S. D. GOOLD, and J. ABELSON, ‘What Is Public Deliberation?’, Hastings Center Report, vol. 42, no. 2, pp. 14–16, Mar. 2012, doi: 10.1002/hast.26
[31]
K. Staley and C. Doherty, ‘It’s not evidence, it’s insight: bringing patients’ perspectives into health technology appraisal at NICE’, Research Involvement and Engagement, vol. 2, no. 1, Dec. 2016, doi: 10.1186/s40900-016-0018-y
[32]
R. Watermeyer, ‘Public intellectuals vs. new public management: the defeat of public engagement in higher education’, Studies in Higher Education, vol. 41, no. 12, pp. 2271–2285, Dec. 2016, doi: 10.1080/03075079.2015.1034261
[33]
B. Percy-Smith, ‘“You think you know? ... You have no idea”: youth participation in health policy development’, Health Education Research, vol. 22, no. 6, pp. 879–894, Aug. 2006, doi: 10.1093/her/cym032
[34]
K. Staley, ‘“Is it worth doing?” Measuring the impact of patient and public involvement in research’, Research Involvement and Engagement, vol. 1, no. 1, Dec. 2015, doi: 10.1186/s40900-015-0008-5
[35]
L. Richardson, ‘Putting the Research Boot on the Policymakers’ Foot: Can Participatory Approaches Change the Relationship between Policymakers and Evaluation?’, Social Policy & Administration, vol. 47, no. 4, pp. 483–500, Aug. 2013, doi: 10.1111/spol.12031
[36]
R. Telford, J. D. Boote, and C. L. Cooper, ‘What does it mean to involve consumers successfully in NHS research? A consensus study’, Health Expectations, vol. 7, no. 3, pp. 209–220, Aug. 2004, doi: 10.1111/j.1369-7625.2004.00278.x
[37]
Brunton, G; Caird, J; Stokes, G; Stansfield, C; Kneale, D; Richardson, M ; and others, ‘Review 1: Community engagement for health via coalitions, collaborations and partnerships: A systematic review’. EPPI Centre, Social Science Research Unit, Institute of Education, University of London, 2015. Available: https://www.nice.org.uk/guidance/ng44/evidence/evidence-review-1-community-engagement-2015-brunton-pdf-2368403677
[38]
G. Hubbard, L. Kidd, E. Donaghy, C. McDonald, and N. Kearney, ‘A review of literature about involving people affected by cancer in research, policy and planning and practice’, Patient Education and Counseling, vol. 65, no. 1, pp. 21–33, Jan. 2007, doi: 10.1016/j.pec.2006.02.009
[39]
T. Moules and N. O’Brien, ‘Participation in perspective: reflections from research projects’, Nurse Researcher, vol. 19, no. 2, pp. 17–22, Jan. 2012, doi: 10.7748/nr2012.01.19.2.17.c8904
[40]
Grand, Ann ; Holliman, Richard ; Collins, Trevor ; Adams, Anne, ‘“We muddle our way through”: shared and distributed expertise in digital engagement with research’, Journal of Science Communication, vol. Vol.15(4), 2016, Available: https://jcom.sissa.it/archive/15/04/JCOM_1504_2016_A05
[41]
Murphy, M K ; Black, N A ; Lamping, D L ; Mckee, C M ; Sanderson, C F ; Askham, J ; Marteau, T, ‘Consensus development methods, and their use in clinical guideline development’, Health Technology Assessment, 1998, Available: https://www.journalslibrary.nihr.ac.uk/hta/hta2030/#/full-report
[42]
Holliman, Richard et al, ‘An Open Research University’. The Open University, 2015. Available: http://oro.open.ac.uk/44255/
[43]
Stokes G, Richardson M, Brunton G, Khatwa M, Thomas J, ‘Review 3: Community engagement for health via coalitions, collaborations and partnerships (on-line social media and social networks) – a systematic review and metaanalysis’, 2015. Available: https://eppi.ioe.ac.uk/cms/Default.aspx?tabid=3478