Arnstein, Sherry R. 1969. ‘A Ladder Of Citizen Participation’. Journal of the American Institute of Planners 35 (4): 216–24. https://doi.org/10.1080/01944366908977225.
Beresford, Peter. 2007. ‘User Involvement, Research and Health Inequalities: Developing New Directions’. Health & Social Care in the Community 15 (4): 306–12. https://doi.org/10.1111/j.1365-2524.2007.00688.x.
BLACKSHER, ERIKA, ALICE DIEBEL, PIERRE-GERLIER FOREST, SUSAN DORR GOOLD, and JULIA ABELSON. 2012. ‘What Is Public Deliberation?’ Hastings Center Report 42 (2): 14–16. https://doi.org/10.1002/hast.26.
Brunton, G; Caird, J; Stokes, G; Stansfield, C; Kneale, D; Richardson, M ; and others. 2015. Review 1: Community Engagement for Health via Coalitions, Collaborations and Partnerships: A Systematic Review. EPPI Centre, Social Science Research Unit, Institute of Education, University of London. https://www.nice.org.uk/guidance/ng44/evidence/evidence-review-1-community-engagement-2015-brunton-pdf-2368403677.
Burawoy, M. 2004. ‘Public Sociologies: Contradictions, Dilemmas, and Possibilities’. Social Forces 82 (4): 1603–18. https://doi.org/10.1353/sof.2004.0064.
Byrne, Anne, John Canavan, and Michelle Millar. 2009. ‘Participatory Research and the Voice‐centred Relational Method of Data Analysis: Is It Worth It?’ International Journal of Social Research Methodology 12 (1): 67–77. https://doi.org/10.1080/13645570701606044.
Chalmers, Iain, Michael B Bracken, Ben Djulbegovic, et al. 2014. ‘How to Increase Value and Reduce Waste When Research Priorities Are Set’. The Lancet 383 (9912): 156–65. https://doi.org/10.1016/S0140-6736(13)62229-1.
Collins K, Ison R. n.d. Dare We Jump off Arnstein’s Ladder? Social Learning as a New Policy Paradigm. Proceedings of PATH (Participatory Approaches in Science Technology) Conference, 4-7 June 2006, Edinburgh. http://oro.open.ac.uk/8589/.
Cook, W K. 2008. ‘Integrating Research and Action: A Systematic Review of Community-Based Participatory Research to Address Health Disparities in Environmental and Occupational Health in the USA’. Journal of Epidemiology & Community Health 62 (8): 668–76. https://doi.org/10.1136/jech.2007.067645.
Cornwall, A. 1996. ‘Towards Participatory Practice: Participatory Rural Appraisal (PAR) and the Participatory Process’. In Participatory Research in Health: Issues and Experiences. Zed.
Cullen, Anne E., Chris L. S. Coryn, and Jim Rugh. 2011. ‘The Politics and Consequences of Including Stakeholders in International Development Evaluation’. American Journal of Evaluation 32 (3): 345–61. https://doi.org/10.1177/1098214010396076.
Davies C, Wetherell MS and Barnett E. 2006. ‘Deliberation: Towards an Understanding of Practice’. In Citizens at the Centre: Deliberative Participation in Healthcare Decisions. Policy. https://contentstore.cla.co.uk/secure/link?id=9125595f-a9f7-e711-80cd-005056af4099.
Frickel, Scott, Sahra Gibbon, Jeff Howard, Joanna Kempner, Gwen Ottinger, and David J. Hess. 2010. ‘Undone Science: Charting Social Movement and Civil Society Challenges to Research Agenda Setting’. Science, Technology, & Human Values 35 (4): 444–73. https://doi.org/10.1177/0162243909345836.
Grand, Ann ; Holliman, Richard ; Collins, Trevor ; Adams, Anne. 2016. ‘“We Muddle Our Way through”: Shared and Distributed Expertise in Digital Engagement with Research’. Journal of Science Communication Vol.15(4). https://jcom.sissa.it/archive/15/04/JCOM_1504_2016_A05.
Hart, Roger A. and UNICEF. International Child Development Centre. 1992. Children’s Participation: From Tokenism to Citizenship. No.4. UNICEF International Child Development Centre.
Heggenhougen, Kris, and Stella R. Quah. 2008. International Encyclopedia of Public Health. Elsevier/Academic Press. http://www.sciencedirect.com/science/referenceworks/9780123739605.
Holliman, Richard et al. 2015. An Open Research University. The Open University. http://oro.open.ac.uk/44255/.
Hubbard, Gill, Lisa Kidd, Edward Donaghy, Charlotte McDonald, and Nora Kearney. 2007. ‘A Review of Literature about Involving People Affected by Cancer in Research, Policy and Planning and Practice’. Patient Education and Counseling 65 (1): 21–33. https://doi.org/10.1016/j.pec.2006.02.009.
Jan Wallcraft and Mary Nettle. 2009. ‘Chapter 1: History, Context and Language.’ In Handbook of Service User Involvement in Mental Health Research. Wiley-Blackwell. http://dx.doi.org/10.1002/9780470743157.
Jones, Nicola, and Eliana Villar. 2008. ‘Situating Children in International Development Policy: Challenges Involved in Successful Evidence-Informed Policy Influencing’. Evidence & Policy: A Journal of Research, Debate and Practice 4 (1): 31–51. https://doi.org/10.1332/174426408783477891.
MARSHMAN, ZOE, BARRY J. GIBSON, JANINE OWENS, et al. 2007. ‘Seen but Not Heard: A Systematic Review of the Place of the Child in 21st-Century Dental Research’. International Journal of Paediatric Dentistry 17 (5): 320–27. https://doi.org/10.1111/j.1365-263X.2007.00845.x.
Martin, Graham P. 2008. ‘“Ordinary People Only”: Knowledge, Representativeness, and the Publics of Public Participation in Healthcare’. Sociology of Health & Illness 30 (1): 35–54. https://doi.org/10.1111/j.1467-9566.2007.01027.x.
Moore, Kelly. 2015. ‘Powered by the People: Scientific Authority in Participatory Science’. In The New Political Sociology of Science: Institutions, Networks, and Power. University of Wisconsin Press. https://contentstore.cla.co.uk/secure/link?id=4d5b1072-890a-e811-80cd-005056af4099.
Moules, Tina, and Niamh O’Brien. 2012. ‘Participation in Perspective: Reflections from Research Projects’. Nurse Researcher 19 (2): 17–22. https://doi.org/10.7748/nr2012.01.19.2.17.c8904.
Murphy, M K ; Black, N A ; Lamping, D L ; Mckee, C M ; Sanderson, C F ; Askham, J ; Marteau, T. 1998. ‘Consensus Development Methods, and Their Use in Clinical Guideline Development’. Health Technology Assessment. https://www.journalslibrary.nihr.ac.uk/hta/hta2030/#/full-report.
Nind, Melanie. 2014. What Is Inclusive Research? Bloomsbury. https://www.bloomsburycollections.com/book/what-is-inclusive-research/.
Nowotny, Helga, Peter Scott, and Michael Gibbons. 2003. ‘Introduction: `Mode 2’ Revisited: The New Production of Knowledge’. Minerva 41 (3): 179–94. https://doi.org/10.1023/A:1025505528250.
Oliver, S. 2008. ‘Public and Consumer Participation in Policy and Research’. In International Encyclopedia of Public Health. Elsevier. https://doi.org/10.1016/B978-012373960-5.00586-4.
Oliver, S, L Clarke-Jones, R Rees, et al. 2004. ‘Involving Consumers in Research and Development Agenda Setting for the NHS: Developing an Evidence-Based Approach’. Health Technology Assessment 8 (15). https://doi.org/10.3310/hta8150.
Oliver, Sandy, Kristin Liabo, Ruth Stewart, and Rebecca Rees. 2015. ‘Public Involvement in Research: Making Sense of the Diversity’. Journal of Health Services Research & Policy 20 (1): 45–51. https://doi.org/10.1177/1355819614551848.
Pawson, R., Boaz, A., Grayson, L., Long, A. & Barnes, C. 2003. Types and Quality of Knowledge in Social Care. Social Care Institute for Excellence. https://www.scie-socialcareonline.org.uk/types-and-quality-of-knowledge-in-social-care/r/a11G00000017vBqIAI.
Percy-Smith, B. 2006. ‘“You Think You Know? ... You Have No Idea”: Youth Participation in Health Policy Development’. Health Education Research 22 (6): 879–94. https://doi.org/10.1093/her/cym032.
Richardson, Liz. 2013. ‘Putting the Research Boot on the Policymakers’ Foot: Can Participatory Approaches Change the Relationship between Policymakers and Evaluation?’ Social Policy & Administration 47 (4): 483–500. https://doi.org/10.1111/spol.12031.
Rickinson M, Sebba J, Edwards A. 2011. ‘Ways of Thinking about User Engagement’. In Improving Research through User Engagement. Routledge. https://contentstore.cla.co.uk/secure/link?id=22b2337c-3700-e811-80cd-005056af4099.
Rifkin, Susan B., Pat Pridmore, and Teaching Aids at Low Cost. 2001. Partners in Planning: Information, Participation and Empowerment. Macmillan.
Rowe, Gene, and Lynn J. Frewer. 2005. ‘A Typology of Public Engagement Mechanisms’. Science, Technology, & Human Values 30 (2): 251–90. https://doi.org/10.1177/0162243904271724.
Staley, Kristina. 2015. ‘“Is It Worth Doing?” Measuring the Impact of Patient and Public Involvement in Research’. Research Involvement and Engagement 1 (1). https://doi.org/10.1186/s40900-015-0008-5.
Staley, Kristina, and Caroline Doherty. 2016. ‘It’s Not Evidence, It’s Insight: Bringing Patients’ Perspectives into Health Technology Appraisal at NICE’. Research Involvement and Engagement 2 (1). https://doi.org/10.1186/s40900-016-0018-y.
Stewart, Ruth, and Kristin Liabo. 2012. ‘Involvement in Research without Compromising Research Quality’. Journal of Health Services Research & Policy 17 (4): 248–51. https://doi.org/10.1258/jhsrp.2012.011086.
Stokes G, Richardson M, Brunton G, Khatwa M, Thomas J. 2015. ‘Review 3: Community Engagement for Health via Coalitions, Collaborations and Partnerships (on-Line Social Media and Social Networks) – a Systematic Review and Metaanalysis’. EPPI-Centre, Social Science Research Unit, UCL Institute of Education. https://eppi.ioe.ac.uk/cms/Default.aspx?tabid=3478.
Telford, Rosemary, Jonathan D. Boote, and Cindy L. Cooper. 2004. ‘What Does It Mean to Involve Consumers Successfully in NHS Research? A Consensus Study’. Health Expectations 7 (3): 209–20. https://doi.org/10.1111/j.1369-7625.2004.00278.x.
Warren, Jon, and Kayleigh Garthwaite. 2015. ‘Whose Side Are We on and for Whom Do We Write? Notes on Issues and Challenges Facing Those Researching and Evaluating Public Policy’. Evidence & Policy: A Journal of Research, Debate and Practice 11 (2): 225–37. https://doi.org/10.1332/174426415X14314311257040.
Watermeyer, Richard. 2016. ‘Public Intellectuals vs. New Public Management: The Defeat of Public Engagement in Higher Education’. Studies in Higher Education 41 (12): 2271–85. https://doi.org/10.1080/03075079.2015.1034261.