Bibliography for SOCS0059: Research Engagement, Participation and Impact BETA

Arnstein, S.R. (1969) ‘A Ladder Of Citizen Participation’, Journal of the American Institute of Planners, 35(4), pp. 216–224. Available at: https://doi.org/10.1080/01944366908977225.

Beresford, P. (2007) ‘User involvement, research and health inequalities: developing new directions’, Health & Social Care in the Community, 15(4), pp. 306–312. Available at: https://doi.org/10.1111/j.1365-2524.2007.00688.x.

BLACKSHER, E. et al. (2012) ‘What Is Public Deliberation?’, Hastings Center Report, 42(2), pp. 14–16. Available at: https://doi.org/10.1002/hast.26.

Brunton, G; Caird, J; Stokes, G; Stansfield, C; Kneale, D; Richardson, M ; and others (2015) ‘Review 1: Community engagement for health via coalitions, collaborations and partnerships: A systematic review’. EPPI Centre, Social Science Research Unit, Institute of Education, University of London. Available at: https://www.nice.org.uk/guidance/ng44/evidence/evidence-review-1-community-engagement-2015-brunton-pdf-2368403677.

Burawoy, M. (2004) ‘Public Sociologies: Contradictions, Dilemmas, and Possibilities’, Social Forces, 82(4), pp. 1603–1618. Available at: https://doi.org/10.1353/sof.2004.0064.

Byrne, A., Canavan, J. and Millar, M. (2009) ‘Participatory research and the voice‐centred relational method of data analysis: is it worth it?’, International Journal of Social Research Methodology, 12(1), pp. 67–77. Available at: https://doi.org/10.1080/13645570701606044.

Chalmers, I. et al. (2014) ‘How to increase value and reduce waste when research priorities are set’, The Lancet, 383(9912), pp. 156–165. Available at: https://doi.org/10.1016/S0140-6736(13)62229-1.

Collins K, Ison R (no date) ‘Dare we jump off Arnstein’s ladder? Social learning as a new policy paradigm’. Proceedings of PATH (Participatory Approaches in Science Technology) Conference, 4-7 June 2006, Edinburgh. Available at: http://oro.open.ac.uk/8589/.

Cook, W.K. (2008) ‘Integrating research and action: a systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA’, Journal of Epidemiology & Community Health, 62(8), pp. 668–676. Available at: https://doi.org/10.1136/jech.2007.067645.

Cornwall, A. (1996) ‘Towards participatory practice: Participatory rural appraisal (PAR) and the participatory process’, in Participatory research in health: issues and experiences. London: Zed, pp. 94–107.

Cullen, A.E., Coryn, C.L.S. and Rugh, J. (2011) ‘The Politics and Consequences of Including Stakeholders in International Development Evaluation’, American Journal of Evaluation, 32(3), pp. 345–361. Available at: https://doi.org/10.1177/1098214010396076.

Davies C, Wetherell MS and Barnett E (2006) ‘Deliberation: towards an understanding of practice’, in Citizens at the centre: deliberative participation in healthcare decisions. Bristol: Policy. Available at: https://contentstore.cla.co.uk/secure/link?id=9125595f-a9f7-e711-80cd-005056af4099.

Frickel, S. et al. (2010) ‘Undone Science: Charting Social Movement and Civil Society Challenges to Research Agenda Setting’, Science, Technology, & Human Values, 35(4), pp. 444–473. Available at: https://doi.org/10.1177/0162243909345836.

Grand, Ann ; Holliman, Richard ; Collins, Trevor ; Adams, Anne (2016) ‘“We muddle our way through”: shared and distributed expertise in digital engagement with research’, Journal of Science Communication, Vol.15(4). Available at: https://jcom.sissa.it/archive/15/04/JCOM_1504_2016_A05.

Hart, R.A. and UNICEF. International Child Development Centre (1992) Children’s participation: from tokenism to citizenship. Florence: UNICEF International Child Development Centre.

Heggenhougen, K. and Quah, S.R. (2008) International encyclopedia of public health. Amsterdam: Elsevier/Academic Press. Available at: http://www.sciencedirect.com/science/referenceworks/9780123739605.

Holliman, Richard et al (2015) ‘An Open Research University’. The Open University. Available at: http://oro.open.ac.uk/44255/.

Hubbard, G. et al. (2007) ‘A review of literature about involving people affected by cancer in research, policy and planning and practice’, Patient Education and Counseling, 65(1), pp. 21–33. Available at: https://doi.org/10.1016/j.pec.2006.02.009.

Jan Wallcraft and Mary Nettle (2009) ‘Chapter 1: History, context and language.’, in Handbook of service user involvement in mental health research. Chichester, UK: Wiley-Blackwell. Available at: http://dx.doi.org/10.1002/9780470743157.

Jones, N. and Villar, E. (2008) ‘Situating children in international development policy: challenges involved in successful evidence-informed policy influencing’, Evidence & Policy: A Journal of Research, Debate and Practice, 4(1), pp. 31–51. Available at: https://doi.org/10.1332/174426408783477891.

MARSHMAN, Z. et al. (2007) ‘Seen but not heard: a systematic review of the place of the child in 21st-century dental research’, International Journal of Paediatric Dentistry, 17(5), pp. 320–327. Available at: https://doi.org/10.1111/j.1365-263X.2007.00845.x.

Martin, G.P. (2008) ‘“Ordinary people only”: knowledge, representativeness, and the publics of public participation in healthcare’, Sociology of Health & Illness, 30(1), pp. 35–54. Available at: https://doi.org/10.1111/j.1467-9566.2007.01027.x.

Moore, K. (2015) ‘Powered by the People: Scientific Authority in Participatory Science’, in The New Political Sociology of Science: Institutions, Networks, and Power. Madison, WI: University of Wisconsin Press, pp. 299–323. Available at: https://contentstore.cla.co.uk/secure/link?id=4d5b1072-890a-e811-80cd-005056af4099.

Moules, T. and O’Brien, N. (2012) ‘Participation in perspective: reflections from research projects’, Nurse Researcher, 19(2), pp. 17–22. Available at: https://doi.org/10.7748/nr2012.01.19.2.17.c8904.

Murphy, M K ; Black, N A ; Lamping, D L ; Mckee, C M ; Sanderson, C F ; Askham, J ; Marteau, T (1998) ‘Consensus development methods, and their use in clinical guideline development’, Health Technology Assessment [Preprint]. Available at: https://www.journalslibrary.nihr.ac.uk/hta/hta2030/#/full-report.

Nind, M. (2014) What is inclusive research? London: Bloomsbury. Available at: https://www.bloomsburycollections.com/book/what-is-inclusive-research/.

Nowotny, H., Scott, P. and Gibbons, M. (2003) ‘Introduction: `Mode 2’ Revisited: The New Production of Knowledge’, Minerva, 41(3), pp. 179–194. Available at: https://doi.org/10.1023/A:1025505528250.

Oliver, S. et al. (2004) ‘Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach’, Health Technology Assessment, 8(15). Available at: https://doi.org/10.3310/hta8150.

Oliver, S. (2008) ‘Public and Consumer Participation in Policy and Research’, in International Encyclopedia of Public Health. Elsevier, pp. 408–415. Available at: https://doi.org/10.1016/B978-012373960-5.00586-4.

Oliver, S. et al. (2015) ‘Public involvement in research: making sense of the diversity’, Journal of Health Services Research & Policy, 20(1), pp. 45–51. Available at: https://doi.org/10.1177/1355819614551848.

Pawson, R., Boaz, A., Grayson, L., Long, A. & Barnes, C. (2003) ‘Types and quality of knowledge in social care’. Social Care Institute for Excellence. Available at: https://www.scie-socialcareonline.org.uk/types-and-quality-of-knowledge-in-social-care/r/a11G00000017vBqIAI.

Percy-Smith, B. (2006) ‘“You think you know? ... You have no idea”: youth participation in health policy development’, Health Education Research, 22(6), pp. 879–894. Available at: https://doi.org/10.1093/her/cym032.

Richardson, L. (2013) ‘Putting the Research Boot on the Policymakers’ Foot: Can Participatory Approaches Change the Relationship between Policymakers and Evaluation?’, Social Policy & Administration, 47(4), pp. 483–500. Available at: https://doi.org/10.1111/spol.12031.

Rickinson M, Sebba J, Edwards A (2011) ‘Ways of thinking about user engagement’, in Improving research through user engagement. Abingdon: Routledge. Available at: https://contentstore.cla.co.uk/secure/link?id=22b2337c-3700-e811-80cd-005056af4099.

Rifkin, S.B., Pridmore, P., and Teaching Aids at Low Cost (2001) Partners in planning: information, participation and empowerment. London: Macmillan.

Rowe, G. and Frewer, L.J. (2005) ‘A Typology of Public Engagement Mechanisms’, Science, Technology, & Human Values, 30(2), pp. 251–290. Available at: https://doi.org/10.1177/0162243904271724.

Staley, K. (2015) ‘“Is it worth doing?” Measuring the impact of patient and public involvement in research’, Research Involvement and Engagement, 1(1). Available at: https://doi.org/10.1186/s40900-015-0008-5.

Staley, K. and Doherty, C. (2016) ‘It’s not evidence, it’s insight: bringing patients’ perspectives into health technology appraisal at NICE’, Research Involvement and Engagement, 2(1). Available at: https://doi.org/10.1186/s40900-016-0018-y.

Stewart, R. and Liabo, K. (2012) ‘Involvement in research without compromising research quality’, Journal of Health Services Research & Policy, 17(4), pp. 248–251. Available at: https://doi.org/10.1258/jhsrp.2012.011086.

Stokes G, Richardson M, Brunton G, Khatwa M, Thomas J (2015) Review 3: Community engagement for health via coalitions, collaborations and partnerships (on-line social media and social networks) – a systematic review and metaanalysis. EPPI-Centre, Social Science Research Unit, UCL Institute of Education. Available at: https://eppi.ioe.ac.uk/cms/Default.aspx?tabid=3478.

Telford, R., Boote, J.D. and Cooper, C.L. (2004) ‘What does it mean to involve consumers successfully in NHS research? A consensus study’, Health Expectations, 7(3), pp. 209–220. Available at: https://doi.org/10.1111/j.1369-7625.2004.00278.x.

Warren, J. and Garthwaite, K. (2015) ‘Whose side are we on and for whom do we write? Notes on issues and challenges facing those researching and evaluating public policy’, Evidence & Policy: A Journal of Research, Debate and Practice, 11(2), pp. 225–237. Available at: https://doi.org/10.1332/174426415X14314311257040.

Watermeyer, R. (2016) ‘Public intellectuals vs. new public management: the defeat of public engagement in higher education’, Studies in Higher Education, 41(12), pp. 2271–2285. Available at: https://doi.org/10.1080/03075079.2015.1034261.