Arnstein SR, ‘A Ladder Of Citizen Participation’ (1969) 35 Journal of the American Institute of Planners 216
Beresford P, ‘User Involvement, Research and Health Inequalities: Developing New Directions’ (2007) 15 Health & Social Care in the Community 306
BLACKSHER E and others, ‘What Is Public Deliberation?’ (2012) 42 Hastings Center Report 14
Brunton, G; Caird, J; Stokes, G; Stansfield, C; Kneale, D; Richardson, M ; and others, ‘Review 1: Community Engagement for Health via Coalitions, Collaborations and Partnerships: A Systematic Review’ <https://www.nice.org.uk/guidance/ng44/evidence/evidence-review-1-community-engagement-2015-brunton-pdf-2368403677>
Burawoy M, ‘Public Sociologies: Contradictions, Dilemmas, and Possibilities’ (2004) 82 Social Forces 1603
Byrne A, Canavan J and Millar M, ‘Participatory Research and the Voice‐centred Relational Method of Data Analysis: Is It Worth It?’ (2009) 12 International Journal of Social Research Methodology 67
Chalmers I and others, ‘How to Increase Value and Reduce Waste When Research Priorities Are Set’ (2014) 383 The Lancet 156
Collins K, Ison R, ‘Dare We Jump off Arnstein’s Ladder? Social Learning as a New Policy Paradigm’ <http://oro.open.ac.uk/8589/>
Cook WK, ‘Integrating Research and Action: A Systematic Review of Community-Based Participatory Research to Address Health Disparities in Environmental and Occupational Health in the USA’ (2008) 62 Journal of Epidemiology & Community Health 668
Cornwall A, ‘Towards Participatory Practice: Participatory Rural Appraisal (PAR) and the Participatory Process’, Participatory research in health: issues and experiences (Zed 1996)
Cullen AE, Coryn CLS and Rugh J, ‘The Politics and Consequences of Including Stakeholders in International Development Evaluation’ (2011) 32 American Journal of Evaluation 345
Davies C, Wetherell MS and Barnett E, ‘Deliberation: Towards an Understanding of Practice’, Citizens at the centre: deliberative participation in healthcare decisions (Policy 2006) <https://contentstore.cla.co.uk/secure/link?id=9125595f-a9f7-e711-80cd-005056af4099>
Frickel S and others, ‘Undone Science: Charting Social Movement and Civil Society Challenges to Research Agenda Setting’ (2010) 35 Science, Technology, & Human Values 444
Grand, Ann ; Holliman, Richard ; Collins, Trevor ; Adams, Anne, ‘“We Muddle Our Way through”: Shared and Distributed Expertise in Digital Engagement with Research’ (2016) Vol.15(4) Journal of Science Communication <https://jcom.sissa.it/archive/15/04/JCOM_1504_2016_A05>
Hart RA and UNICEF. International Child Development Centre, Children’s Participation: From Tokenism to Citizenship, vol no.4 (UNICEF International Child Development Centre 1992)
Heggenhougen K and Quah SR, International Encyclopedia of Public Health (Elsevier/Academic Press 2008) <http://www.sciencedirect.com/science/referenceworks/9780123739605>
Holliman, Richard et al, ‘An Open Research University’ <http://oro.open.ac.uk/44255/>
Hubbard G and others, ‘A Review of Literature about Involving People Affected by Cancer in Research, Policy and Planning and Practice’ (2007) 65 Patient Education and Counseling 21
Jan Wallcraft and Mary Nettle, ‘Chapter 1: History, Context and Language.’, Handbook of service user involvement in mental health research (Wiley-Blackwell 2009) <http://dx.doi.org/10.1002/9780470743157>
Jones N and Villar E, ‘Situating Children in International Development Policy: Challenges Involved in Successful Evidence-Informed Policy Influencing’ (2008) 4 Evidence & Policy: A Journal of Research, Debate and Practice 31
MARSHMAN Z and others, ‘Seen but Not Heard: A Systematic Review of the Place of the Child in 21st-Century Dental Research’ (2007) 17 International Journal of Paediatric Dentistry 320
Martin GP, ‘“Ordinary People Only”: Knowledge, Representativeness, and the Publics of Public Participation in Healthcare’ (2008) 30 Sociology of Health & Illness 35
Moore K, ‘Powered by the People: Scientific Authority in Participatory Science’, The New Political Sociology of Science: Institutions, Networks, and Power (University of Wisconsin Press 2015) <https://contentstore.cla.co.uk/secure/link?id=4d5b1072-890a-e811-80cd-005056af4099>
Moules T and O’Brien N, ‘Participation in Perspective: Reflections from Research Projects’ (2012) 19 Nurse Researcher 17
Murphy, M K ; Black, N A ; Lamping, D L ; Mckee, C M ; Sanderson, C F ; Askham, J ; Marteau, T, ‘Consensus Development Methods, and Their Use in Clinical Guideline Development’ [1998] Health Technology Assessment <https://www.journalslibrary.nihr.ac.uk/hta/hta2030/#/full-report>
Nind M, What Is Inclusive Research? (Bloomsbury 2014) <https://www.bloomsburycollections.com/book/what-is-inclusive-research/>
Nowotny H, Scott P and Gibbons M, ‘Introduction: `Mode 2’ Revisited: The New Production of Knowledge’ (2003) 41 Minerva 179
Oliver S, ‘Public and Consumer Participation in Policy and Research’, International Encyclopedia of Public Health (Elsevier 2008) <http://www.sciencedirect.com/science/referenceworks/9780123739605>
Oliver S and others, ‘Involving Consumers in Research and Development Agenda Setting for the NHS: Developing an Evidence-Based Approach’ (2004) 8 Health Technology Assessment
Oliver S and others, ‘Public Involvement in Research: Making Sense of the Diversity’ (2015) 20 Journal of Health Services Research & Policy 45
Pawson, R., Boaz, A., Grayson, L., Long, A. & Barnes, C., ‘Types and Quality of Knowledge in Social Care’ <https://www.scie-socialcareonline.org.uk/types-and-quality-of-knowledge-in-social-care/r/a11G00000017vBqIAI>
Percy-Smith B, ‘“You Think You Know? ... You Have No Idea”: Youth Participation in Health Policy Development’ (2006) 22 Health Education Research 879
Richardson L, ‘Putting the Research Boot on the Policymakers’ Foot: Can Participatory Approaches Change the Relationship between Policymakers and Evaluation?’ (2013) 47 Social Policy & Administration 483
Rickinson M, Sebba J, Edwards A, ‘Ways of Thinking about User Engagement’, Improving research through user engagement (Routledge 2011) <https://contentstore.cla.co.uk/secure/link?id=22b2337c-3700-e811-80cd-005056af4099>
Rifkin SB, Pridmore P, and Teaching Aids at Low Cost, Partners in Planning: Information, Participation and Empowerment (Macmillan 2001)
Rowe G and Frewer LJ, ‘A Typology of Public Engagement Mechanisms’ (2005) 30 Science, Technology, & Human Values 251
Staley K, ‘“Is It Worth Doing?” Measuring the Impact of Patient and Public Involvement in Research’ (2015) 1 Research Involvement and Engagement
Staley K and Doherty C, ‘It’s Not Evidence, It’s Insight: Bringing Patients’ Perspectives into Health Technology Appraisal at NICE’ (2016) 2 Research Involvement and Engagement
Stewart R and Liabo K, ‘Involvement in Research without Compromising Research Quality’ (2012) 17 Journal of Health Services Research & Policy 248
Stokes G, Richardson M, Brunton G, Khatwa M, Thomas J, ‘Review 3: Community Engagement for Health via Coalitions, Collaborations and Partnerships (on-Line Social Media and Social Networks) – a Systematic Review and Metaanalysis’ (2015) <https://eppi.ioe.ac.uk/cms/Default.aspx?tabid=3478>
Telford R, Boote JD and Cooper CL, ‘What Does It Mean to Involve Consumers Successfully in NHS Research? A Consensus Study’ (2004) 7 Health Expectations 209
Warren J and Garthwaite K, ‘Whose Side Are We on and for Whom Do We Write? Notes on Issues and Challenges Facing Those Researching and Evaluating Public Policy’ (2015) 11 Evidence & Policy: A Journal of Research, Debate and Practice 225
Watermeyer R, ‘Public Intellectuals vs. New Public Management: The Defeat of Public Engagement in Higher Education’ (2016) 41 Studies in Higher Education 2271